Updated Bucket List – Items #1-18

Last time I reviewed my new Bucket List I had 17 items and little progress towards any of them. However, I’m now delighted to report that I can cross off one item and have made significant progress towards three others:

  1. Coffee with a friend in our local Starbucks
  2. To be a bridesmaid
  3. To visit New Zealand
  4. To live on the ocean
  5. To own a Class B motor-home (Roadtrek ideally)
  6. Waist length hair
  7. Day-trip to Frankenmuth & Bronners
  8. Reschedule & enjoy my belated 45th birthday vacation
  9. Acceptance of RADS diagnosis and limitations that places on my life
  10. Despite RADS diagnosis, work on improving the quality of my life and work at getting back to work.
  11. year long road trip following 70 degree (21 C) weather throughout the contiguous United States.
  12. Lose steroid weight and return to a healthy weight
  13. Get out walking, locally and a little further afield on walking trails and then snowshoeing as determined by the weather
  14. Visit Harrison Hot Springs in BC
  15. Go indoor skydiving
  16. Attend the Albuquerque International Balloon Festival
  17. Go on a picnic

Yesterday, with a great deal of help from my friend I was able to cross off #1. In fact we went a step further and didn’t just meet for coffee in Starbucks but we actually met for coffee in a small local mall. Thankfully, it doesn’t have a juice/smoothie vendor and the food court is small enough that between us we could keep an eye out for potential concerns.

On arriving at the Mall we had a quick review of how to give me an Epi Pen (just in case) and then had a small wander around the mall. My first time doing so in about 6 months. Unfortunately, the cleaning machine was out, and in use, for part of the mall and that scent was too strong for me to manage so I didn’t make it to the book store. However, we did have coffee! The cleaner in the food court very kindly agreed to clean the bathrooms while we did, rather than washing the floors and tables down, at that time. It seems that the cleaning services in the Mall all use a citrus/strong scented solution for washing the floors.

Kai alerted a couple of times that I needed to use my inhalers and ultimately that we needed to leave, due to scents and my reactions. I’m so proud of him.

Funnily enough having decided to make this alert extremely obvious while we were in the hospital (jumping on, & pawing at, my head literally) he remembered how to do it more subtly, but still insistently, yesterday. If I didn’t know better I’d think it was deliberate on his part as a few patients had commented on not seeing him working, not realising that his usual alerts are very subtle and not obvious unless you’re looking for them. He can’t really have decided to show off, can he?

I am so thankful to have a friend who was willing to ensure that she was completely safe (unscented) to be with me, and to then look out and advocate for me. Unfortunately I can’t often advocate for myself as I can’t get close enough to the scent to ask the person concerned if they’d help me out.

So #1 is completed! Though it will definitely stay as a goal to meet on a regular basis.

I’ve also made good progress towards items 9 & 10 (Acceptance of RADS diagnosis and limitations that places on my life & Despite RADS diagnosis, work on improving the quality of my life and work at getting back to work.)

It’s a fine balance. Much as it was great to get out of the house, and meet for coffee yesterday it took a lot of courage to do so and I needed a lot of help to make it safe enough.

It’s all about living in this moment.

In this moment there isn’t a citrus fruit or product in my vicinity so I enjoy it. I need to be cautious and take appropriate precautions but I’m not going to give up on life just because I know what could kill me & how likely that is. I could still get hit by that proverbial meteor!!

Oddly enough I’ve also made some progress towards items 6 & 12 (Waist length hair & Lose steroid weight and return to a healthy weight).  I realised how much longer my hair has grown over the past year when I braided it for the first time in a while during my hospital stay and the braid came quite a lot further down my back. My hair is still very fine and my entire braid thinner than most people’s bangs…. but it’s growing!

Also, despite eating hospital food I actually lost some weight in the hospital. I’ve still got a long way to go to get back to a healthy weight , after the impact of the steroids, but I’m finally not going up every day!

So given my recent success in meeting item 1 I’m going to replace it with a new item. At least once a month, taking appropriate precautions, get out and do something social.

I’m also adding a new item to my list. At least once a day, do something creative. That could be as simple as writing this Blog or colouring. Alternatively it could enable my trying out a new craft, or one that I haven’t done in a while, or can’t do as well as I used to so rarely do anymore. It could be writing a poem, a story or exercising my somewhat limited artistic talents. It could also be cooking a meal or baking something that’s a little more complicated than taking it out of the box! Just because I’m only cooking for me it doesn’t mean that I don’t deserve to cook an interesting meal for myself.

So here’s my updated list. The items in italics are those that I’ve made good progress towards!

  1. At least once a month, taking appropriate precautions, get out and do something social
  2. To be a bridesmaid
  3. To visit New Zealand
  4. To live on the ocean
  5. To own a Class B motor-home (Roadtrek ideally)
  6. Waist length hair
  7. Day-trip to Frankenmuth & Bronners
  8. Reschedule & enjoy my belated 45th birthday vacation
  9. Acceptance of RADS diagnosis and limitations that places on my life
  10. Despite RADS diagnosis, work on improving the quality of my life and work at getting back to work
  11. year long road trip following 70 degree (21 C) weather throughout the contiguous United States.
  12. Lose steroid weight and return to a healthy weight
  13. Get out walking, locally and a little further afield on walking trails and then snowshoeing as determined by the weather
  14. Visit Harrison Hot Springs in BC
  15. Go indoor skydiving
  16. Attend the Albuquerque International Balloon Festival
  17. Go on a picnic
  18. At least once a day, do something creative

How’s your Bucket List coming on?

NB. Please note that Epi Pen’s come in cases. So to use one you need to take it out of the case first. Then it’s…

Blue to the Sky, Orange to the thigh

Which means take the blue cap off and make sure that end is towards the sky, swing the pen and ‘stab’ the person with the orange end on the outside, fleshly part of their thigh (through their clothes) and count for 3 seconds. Call for an ambulance and paramedic service.

If there is a delay in getting emergency services you may need to give a second pen. Most people with severe allergies, and known anaphylaxis reactions, will carry several of them on them. I also carry inhalers and liquid Benadryl which can also help buy me some time.

The Epi Pen needle is on a spring within the orange section and the blue cap releases the safety catch for it. You are never exposed to the needle. So it’s completely safe for you to give to somebody else if they need you to.

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