Bucket List Revisited…

It’s been a long time since I revisited my bucket list and so I thought that I’d do so today.

The last time I updated it, I had 15 entries:

  1. To be a bridesmaid
  2. To visit New Zealand
  3. To live on the ocean
  4. To own a Class B motor-home (Roadtrek ideally)
  5. Day-trip to Frankenmuth & Bronners
  6. Reschedule & enjoy my belated 45th birthday vacation
  7. year-long road trip following 70 degree (21 C) weather throughout the contiguous United States.
  8. Get out walking, locally and a little further afield on walking trails and then snowshoeing as determined by the weather
  9. Visit Harrison Hot Springs in BC
  10. Go indoor skydiving
  11. Attend the Albuquerque International Balloon Festival
  12. Train Kai in Rally Obedience
  13. Stay at the North Beach Cabins
  14. Swim with dolphins, in the wild
  15. Attend a regular competition rodeo

Unfortunately I’ve only been able to cross one of these off of my list: #5

#1 – #4, #7, #11, #13 & #14 are long term aspirations, probably more likely to be achieved in retirement. #6 I’ve decided to reschedule for my 50th birthday.

#8 I’ve managed a little of, but my lungs still don’t last very long so I’m still pretty restricted in where I can walk safely. I didn’t snowshoe at all last winter. Hopefully, that will change this coming winter.

#9 I’d hoped to achieve this summer but instead chose to place my little travel trailer on a seasonal site at the Busy Beaver Campground on St Joseph’s Island.

#10 is looking pretty unlikely as the nearest indoor skydiving centre seems to be Toronto and my health isn’t good enough to fly down and I’m not sure how well I’d do staying in hotels if I drove down.

#12 While I haven’t trained Kai in Rally Obedience we have been working on some new tasks for him. After I remembered to break down the task into smaller steps and backwards chain the command Kai will now go around my leg and come to a sit between my legs. Unfortunately I had to teach him it twice as I naturally taught him to do it on my dominant side (right) whereas he heels on my left. As I use a hands-free leash with him we’d get in a real mess if he did this to the right while working. I haven’t had to use this new command in public yet but it’s ready for when we need it.

#15 is like #10 and looking unlikely. My health is much better than it was but my sensitivity to my allergens and scents generally remains really high so flying is impossible and to date, I’m not convinced that staying in hotels (assuming I drove) would be any safer.

So it looks like I need a new bucket list, or at least some items on it that I can actually achieve in the next few years. I’m going to have to think about this so watch this space… I’ll be back!

Dating…

So being single in your late 40’s is an interesting experience. Living in a small community and not being the bar type of person leads you to online dating. Oh and what stories there are to tell….

There are the frauds… Usually tragically widowed, with a young child being taken care of by extended family or boarding school while the man himself is either serving in the military or as a civil engineer in far off countries. They’re coming to the end of their service and are looking to settle wherever they meet their ‘partner’.

Then there are those that are simply after ‘hookups’. The post pictures of themselves posing naked in front of mirrors with the counter just being high enough to leave some parts to the imagination. But don’t worry, as soon as you start chatting with these men you’ll be sent dick pics and videos.

The next group seems to be something that not everybody experiences. The rapid commitment and jealousy type. You’ve chatted a bit online, met in person and “wham!!” they want to commit together forever. Having had two failed marriages in very similar circumstances this group scares the **** out of me and I pull away fast. How on earth do they think they can commit when they don’t even know what I eat for breakfast?

Pseudo anthropologists make up the next group. They’ll chat with anybody about anything and use it all as grist for their mill of people observation. They hold themselves slightly apart from the people they are communicating with and really do seem to just be studying how the online community behaves.

Lastly are the unicorns. (Not the third to join an established couple) Unicorns are rare and hard to find. They’re the ones who post pictures of themselves that are actually recent. That are honest about their faults but know their strengths as well. That actually do want a relationship in the real world. Unfortunately many unicorns live far away and make dating an impossibility. If you can find one local to you, and that you are both attracted to each other, be aware that this is a remote possibility and protect it.

Lastly, be clear about what you want. If you just want casual say that. If you’re looking for something permanent say so. Don’t pull the old bait and switch where you start a conversation within one set of rules and then change the rules along the way.

Finally, as the quote says. “I’m not waiting for a hero. I saved myself long ago. I don’t want someone to complete me. I am whole on my own. I just want a weirdo to go on adventures with. Someone who will dance with me, kiss me when I least expect it and make me laugh. That’s it.”

So if any of my friends out there know of a weirdo who loves dogs, hates citrus and most fruits and hopefully lives within an hour of Sault Ste. Marie that you think would fit my request… send them my way. As internet dating is for the birds.

Another year older… Time to reflect

It’s my birthday today and as, is often the case, it led me to reflect on the past year.

I’m pleased to say that for the most part it’s been a peaceful year. I’ve not had any emergency hospital or emergency room admissions. I’ve come close, a few times, to anaphylaxis but have managed to mitigate the reaction fast enough by taking extra antihistamines and getting away from the source immediately.

Both my dogs are fit and healthy. Anything that Kai has eaten (he’s a goof ball off duty!) has been returned one way or the other. So no need for emergency surgery for him thankfully.

Relationship wise there have been a few friends that were friends for a reason or season and others that have proven that they’re here for a lifetime. Nothing difficult or hard to deal with; just the natural ebb and flow of life.

So I am actually delighted to recognise that I had a peaceful year. May this next one be just as peaceful!

Fibromyalga…

A few years ago I went down to southern Ontario to see a specialist about my Osteogenesis imperfecta. Whilst agreeing that I am atypical for my OI, in that I’m tall and most people with OI are short he also added a new diagnosis to my collection: fibromyalgia.

The new diagnosis answered a lot of questions for me as it explains a great number of my symptoms as depicted in the graphic for this Blog. However, treatment for fibromyalgia remains conflicted. Over the counter painkillers, antidepressants and anti-seizure drugs have all been shown to benefit some patients; especially, when combined with physical therapy, occupational therapy and/or counselling.

Unfortunately the weather seems to really affect fibromyalgia symptoms. Cold, damp days and drops in barometric pressure are widely associated with flare-ups in symptoms of the condition, which affects mostly women. Rapid changes in temperature can be problematic too.

On my worst days I feel as so I’m a hundred years old and every bone, joint and muscle hurts. On good days the pain is just there, underlying everything else going on with my health but not front and centre for a change.

So I wish our current weather would make up its mind. We’ve had some really hot days, too hot for me to even go outside as I burn so easily. Then we’ve had the cold, damp days as well. My body can’t seem to decide how to cope with this so my fibromyalgia flares despite the warmth due to the rapid changes in temperature.

Fibromyalgia is much more common than you might think. Recent studies suggest that it affects between 3-6% of the world’s population with 75-90% of those people being women.

To date, the cause of fibromyalgia remains unknown. Genetic studies are being conducted to see if genetics has a part to play. In many cases fibromyalgia is triggered by an accident or trauma of some sort. In other cases there seems to be no rhyme or reason as to why one person gets it and others don’t. It will be interesting to see the results of the ongoing research in this area over the coming years.

In the meantime, I apologise to those of you that I have had to cancel plans with due to a flare, or lack of spoons, and very much appreciate your understanding. With luck, we’ll see effective treatment within my lifetime!

Did you know that your iPhone can now act as a TTY device?

I have been having issues with the fact that to resolve a security issue with my credit card I can only use the telephone. They won’t allow you to deal with these issues by online chat or secure messaging. As you know I’m deaf, and the telephone is difficult for me. My new hearing aids help but for something as important as my finances I felt that it was important that I could communicate clearly.

So I complained to my bank that they only allowed telephone calls and didn’t appear to have a TTY number. (A TTY is text telephone). Not that I thought that I could call them using TTY as I didn’t think that I had a device; but it was the principle that I disagree with.

However, they kindly informed me that my iPhone is now capable of acting as a TTY device! So a few hours later I have my iPhone set up to act as a TTY device and accounts for IP relay or VRS (Video Relay Service).

I still didn’t have a TTY number for my bank. However, I could now contact them using relay services. Relay services are where I type my message to an operator who then speaks on my behalf to the person I’m communicating with. They type that person’s responses back to me so that the whole conversation is in text for me.

I’m proud to say that I just completed my first TTY relay service call! I actually used IP relay service as that uses my computer and gave me the advantage of a full size keyboard to work with rather than my iPhone’s keyboard. But the same system will work from my iPhone too.

I still disagree with the bank only allowing phone calls to deal with security issues. Especially, as using Relay I have to provide my account number, PIN and security question answers via the operator. So an unknown person now has my bank details. Ironically, that doesn’t seem very secure to me.

Just to be safe I have now changed my PIN. I also assume that there would be severe consequences for any Relay operator using the information they communicate in a call.

Anyway, for those of you that need it you can set up your phone under Settings, General, Accessibility, TTY. It’s great to be able to communicate so much more easily. Relay services can be used for personal calls too. Though the thought of having my conversation communicated through a third party disturbs me. However, it does mean that in a non 911 emergency I can get hold of help more easily than just relying on text.

It’s nice to see technology actually being used to improve accessibility. Welcome to the 21st Century!

It’s a hard life…

So I just got back from my second camp at my seasonal site. I feel as so I now have pretty much everything there that I could need and will now only need to take food, clothes, charger for my hearing aids and my knitting!

As you can see from the picture – it’s a hard life for Molly & Kai when we’re camping! They both love it. We go for a walk every 2-4 hours. Not too far as my lungs aren’t up to that yet but there is a small hill to climb which is stretching my limitations in a good way.

Apparently the site is much busier on the weekends. The owners told me that there had been over 15 children there on the previous weekend. Much as I love kids, I think I’ll stick to going mid week where I can.

I still have 8 days of vacation to take before the end of June!

Anyway, this seasonal camping malarky is fun!

Seasonal camping…

A little while ago I posted about my internal debate as to whether I should take a seasonal campsite this year, or travel as I have in the past. I said that I’d let you know my decision.

So, as you can probably tell from the title, I have decided to take a seasonal campsite for 2019. I’ll be staying at the Busy Beaver campground near Hilton Beach on St Joseph’s Island.

The site that I thought I wanted wasn’t initially available but the campground owners, Steve & Lorraine, offered me a different site which is nicely tucked in the trees and so it will get plenty of shade. This is essential with two large dogs, my being a red head and not having any air conditioning! Ironically the first site did become available but after discussion I decided to stay with the site we’d agreed on.

So for the past week or so I’ve been gathering together things that I’ll need. Some of which I had, and others I had to purchase. Hopefully, I’ve pretty much got everything now and if I really do forget something essential at least it’s only just under an hour’s drive door-to-door.

My new adventure starts this coming weekend. I have tickets to see Crystal by the Cirque du Soleil on Saturday. So I’ll be moving on site on Sunday with a plan of staying there until Friday and actually taking some vacation time.

There is no WIFI on site but I have a skyroam device that I want to check out. This device uses cell towers to create a secure WIFI network for a simple payment per day, month or year. I have 13 day passes so I’ll start with them and see how it goes. I’m pretty sure that it won’t be good enough for streaming video but hopefully it will allow me to access my work files so that I can come back to the site over the summer and work from ‘home’.

The weather forecast is a bit unsettling as rain is forecast for most of the week. The forecast keeps changing though so hopefully the rain will blow through before Sunday and I’ll have a dry camp. I’ll be taking wellington boots just in case. Mine aren’t bright pink like the ones in the picture but they’re still flowery!

So I’m starting a new adventure – a seasonal camp site. I’ll let you know how it goes…